Log in

No account? Create an account
I Flunked My Sleep Test - Body by Henson, brain by Seuss. [entries|archive|friends|userinfo]
Kelly J. Cooper

[ website | KJC Edits - let me edit you! ]
[ userinfo | livejournal userinfo ]
[ archive | journal archive ]

I Flunked My Sleep Test [Mar. 19th, 2009|02:47 am]
Kelly J. Cooper
[Tags|, , , , , ]

I flunked my sleep test.

The ONE THING I study on a more-than-regular basis, you'd think I'd score better. But no.

The test started Monday night. Sunday night, I didn’t go to bed until 6:30-ish am, in part because I'm an idiot; in part because I was sad and looking for things to cheer me up; AND in part because I slept all of Friday & Saturday. Despite working all day Sunday, I wasn't that tired Sunday night. Anyway, fell asleep around 7am Monday and then couldn't wake up when the alarms all went off. The beeping one kept going, starting at 2:30pm until I finally dragged my ass out of bed at 5:30pm to get ready to go to the study. So it wasn't GOOD sleep. But it was sleep nonetheless.

I took a shower so that the sticky sensor things would stick to me. I packed up a lot of things to do and eat, because after the sleep study at night, I was going to spend the day sitting around for hours at a time, then taking 20 minute naps. Given the wiring, I wasn’t going anywhere to find food. I brought many things to do because I loathe boredom above ALL other afflictions.

I gassed the bug and zoomed down to Newton. Read Scott Pilgrim volume 5 and then got wired up for sleep. Crashed immediately. Woke at about 3am to pee and couldn’t get back to sleep for 3 hours or so. Apparently I did sleep a little more before mandatory wake up at 6:45am.

Some straps and wires got removed. I took my pills then sat at the desk and read comics – the brain wasn’t up for much more.

They had me lie down for my first nap and I just lay there for the 20 minutes, desperately trying to remember the name of the elephant-headed Indian god of compassion and remover of obstacles. They got me up – I hadn't slept – and I called rmd and she reminded me that I was trying to remember GANESH. Thank goodness. I went back to reading comics until I ran out, then switched to book on ethics/morality that src recommended.

Near the end of the second wakeful period, the tech brought my doctor in to discuss my sleeping all day Monday. Despite the fact that he's fairly sure I don't have narcolepsy, he wanted me to go through the daytime test to completely rule it out and review my response. Unfortunately, since I slept so late Monday, and then didn’t sleep much the night before, he and the tech were pretty sure I was going to screw up my daytime sleep study.


So they sent me home.

Weather was nice. Drove with the windows down. Didn’t stop anywhere due to fatigue and VERY SCARY HAIR. They mark yer scalp with a red grease pencil then put in goop, then other goop, then different goop, then wires. And, although they take the wires off before you leave, the evidence of their STICKING TO YOUR HEAD FOR EIGHT HOURS remains in all its lumpish glory. The monster's wife in Bride of Frankenstein had pretty awesome hair compared to the red-marked gel-encrusted bed-head o'mine. Also, I looked like I'd had my face taped shut, then had the tape ripped off. Big red marks. And the chin sensor gave me eight tiny pimples. Yummy.

I got home and crawled into bed. It took more than 20 minutes, but I did fall asleep and felt much better after my 5+ hour nap. (Note: I don't nap well in that my naps are almost never less than 3-4 hours long). Then I took a long hot shower, necessitated by the 5-10 minutes of nothing but hot water required to MELT THE GOO from my head.

They might have me do another sleep study plus daytime testing at some point in the future, but they'll probably have to argue with my health care provider to get it covered.


This was my third sleep study. No matter how much I sleep-deprive or sleep-saturate myself, I do NOT sleep well at these damn things. I just don't. I'm not sure what trying again will do for data collection. It'll probably just piss me off.

[User Picture]From: rmd
2009-03-19 07:33 am (UTC)
Well crap. That sounds less than ideal. Did they get any good data at all?
(Reply) (Thread)
[User Picture]From: kjc
2009-03-21 08:19 am (UTC)
They said I only slept 3 hours, so they've got a little data to work with on my actual sleep issues.

I'll discuss it further with the Doc in a couple weeks.
(Reply) (Parent) (Thread)
From: moria923
2009-03-19 08:38 am (UTC)
That sounds like a really unpleasant experience, and really disappointing, too, because you'd hoped they'd found out something that could be helpful. I'm really sorry to hear this.

By the way, what's the book you're reading about ethics/morality?
(Reply) (Thread)
[User Picture]From: kjc
2009-03-21 08:19 am (UTC)
Moral Clarity: A Guide for Grown-up Idealists by Susan Neiman.
(Reply) (Parent) (Thread)
[User Picture]From: drwex
2009-03-19 01:44 pm (UTC)

Well, frell

That's annoying as all get-out. I'm sorry to read this.
(Reply) (Thread)
[User Picture]From: kjc
2009-03-21 08:19 am (UTC)

Re: Well, frell

Thank you.
(Reply) (Parent) (Thread)
[User Picture]From: foomf
2009-03-19 07:48 pm (UTC)
They seem to want 4 hours for a test, but if they got ANY sleep they can tell something. My most recent sleep test used only a finger-cuff for blood pressure, a second cuff for oxygenation, a throat mike, and a position sensor that didn't stick well. It's not as good for verifying narcolepsy but is great for identifying apnea-related issues. My mouthpiece is working sorta, but I still have some issues (I can tell because I recall snoring when I am falling asleep.)
(Reply) (Thread)
[User Picture]From: kjc
2009-03-21 08:21 am (UTC)
Yes, they can tell *something*, just not what the day-time study would have shown.

I wish they could break up the test: do the wires one night, the breathing apparatus another night, the straps & leg wires a third night.

What mouthpiece? (Remember, I'm behind on LJ - did you blog about it? If so, pointer?)
(Reply) (Parent) (Thread)
[User Picture]From: foomf
2009-03-22 12:47 am (UTC)
I sorta did. Let me find out where.


Basically it's a thing that holds my jaw forward. They SHOULD be able to do it in parts, they did that with me checking first for apnea before going to the expense of hooking me up to an EEG for 18 hours.
(Reply) (Parent) (Thread)
[User Picture]From: kjc
2009-03-22 01:37 am (UTC)
Ah! Interesting.

One of my problems is that my breathing passages (nose & throat) are apparently really quite small. If I hadn't had my tonsils out when I was a kid, it probably would be much worse.

I too have multiple (unremembered) wake-ups due to both breathing issues and leg jerks, although my O2 doesn't drop below 92%.
(Reply) (Parent) (Thread)