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Kelly J. Cooper

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New Sleep Doctor/New Roof [Feb. 24th, 2009|07:31 pm]
Kelly J. Cooper
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I spent Sunday curled around my belly and feeling generally crappy. Didn’t make it into work. After sleeping all day, I couldn't get to sleep that night til after 3am; thus I didn't get much sleep before 8am, when I woke up and couldn’t get back to sleep. (Third damn day in a row; woke up at 6am both Saturday & Sunday & couldn’t sleep again.) Then the roofers needed me to do stuff and leaned on the doorbell starting at 10am until I finally came downstairs 20 minutes later. (We’re having our leaky roof replaced and 2 skylights put in for better venting.) In case they needed me again, I stayed dressed and awake all Monday morning, fuckin' around online.

Then Monday afternoon was spent waiting to meet, and having a long talk with, my new sleep doctor. This is the fellow who's in charge of the sleep center (Neurocare) where I recently had my sleep study.

I arrived about 5 minutes early (a miracle for me) but didn't actually get in to see him until 70 minutes after my appointment was scheduled. Fortunately, my regular PC doc has prepared me for this sort of behavior, so I had stuff to do. And then we talked for over an hour. So, despite the fact that I'd fed the meter sufficient quarters for 2.5 hours, I still got a damnable parking ticket. Fuckin' Allston. On the plus side, it may be the first time I completed my "fill this out" profile before the appointment – especially impressive since the thing was 3 pages long, double-sided.

He's the first doctor aside from my PC doc to admit that I’m "complicated." Throughout the appointment, we gradually covered my entire medical history going back to having my tonsils removed at age 7 (and the emergency surgery that followed a couple days later after I coughed the seals open). The first part, we spent talking. The second part, he dictated a letter to my PC via his recording machine and I kept interrupting him to add detail or clarify (which, shockingly, he actually enjoyed). He doesn't just want to talk about sleep, he wants to work on my overall health. Whatever. If he can figure out some solution(s) to my sleep issues, we can work on anything else he feels like, up to and including genetic mutation so that I can sleep like a friggin' bat.

Also, according to him I don't qualify for the sleep apnea study I'd mentioned to a few people. I don't actually have sleep apnea nor Restless Leg Syndrome, although I do have an interrupted sleep breathing pattern and a random leg movement level that's 3 times the norm. But since neither is within the range for an official diagnosis of either, I don't have them. Both. Either. Yeah. And, not only did I never reach stage 3 nor stage 4 of sleep during my sleep study, I didn’t have any REM (which is weird, because I remember dreaming).

Ultimately, after speaking for over an hour, he admitted that he doesn't know why I have such serious sleep problems and asked me to do another sleep study, then come back and see him in another 6 weeks. (Although I could've gone in for the sleep study that very night, it takes time for the sleep center to generate the report and more time for him to analyze the data – the man is very busy.)

So, on the upside, despite the fact that we had to talk about my weight, he's not blaming it for the sleep problems (it falls under his treat-the-whole-person philosophy). Also, he admits he doesn’t know what's going on with me and that my case is complicated. And he’s nice, smart, friendly, and startlingly cheerful.

The downside is that I still don't have an answer. I still have fucked up sleep and bonus exhaustion. As I knew there wouldn't be, there's no silver bullet. But man, I was really hoping. There's always a first time!

Today (Tuesday) the roofers ripped off and replaced half our roof and also installed one of the two skylights. Really nice work. However, the ripping and hammering started at 7:30am, leaving me a wrecked zombie hiding on the first floor couch where I dozed and muttered and got nothing useful done all damn day.

[User Picture]From: ceciliatan
2009-02-24 10:39 pm (UTC)
Ouchie, and yet yay for eventual new roof and hopefully for eventual resolution of your sleep troubles.

I have some slightly optimistic news from the Circlet office for you: we paid all authors their royalties pretty much on time this year! So for the moment we are not behind paying anyone for the first time in... years.

I've been really drowsy and weird for seemingly no reason since Saturday. I've been sleeping great at night because corwin's not here, but it's like my whole system is still in recovery from the flea or something. I keep feeling like I'm coming down with something. AGAIN. ugh. But this damn novel is due on Monday so I guess I better get back to writing it instead of screwing around on LJ eh? Oh man I want a nap though. Ugh.
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[User Picture]From: foomf
2009-02-24 11:16 pm (UTC)
I haven't bloggggggged it (I hate that word) but I've been getting fitted for my MOUTH THINGY. Went there last week, they took three impressions of my teeth with various foul-tasting goo-blobs, calibrated the initial starting position for the device, we chose to get the one that does NOT latch in front (as I would certainly unhook it) and it'll be ready ... sometime in the FUTURE. Maybe 3 weeks.

Meanwhile, I am supposed to have a "home sleep test" on Monday next, wherein I hook up a sort of Leela-style device to one arm, sleep with that, and then return it to them at the godawful hour of 7am, only to have to drive in to a 12:30 in-person examination of the results.

This one's just listening for noises, watching pulse and bp and oxygenation. Which should provide them with useful info of some sort.

Unfortunately it means I have to wake up at a godly hour.

In other news, haven't actually done much with trying to circular-breathe for the "didgeridoo" technique for improving back-of-throat tone.
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[User Picture]From: lillibet
2009-02-24 11:38 pm (UTC)
Sorry that things have been so rough. If you wanted to come out here and sleep, you'd be welcome. OK, so there is a toddler, but we can put you where she's not, and she does take a 3 hr. nap most afternoons.

I'm also sorry there's no magic bullet for your sleep disorders, but at least you seem to have someone on the case who's interested in getting to the root of the problem.

I hope tomorrow is a better day.
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[User Picture]From: kimberlogic
2009-02-25 11:55 am (UTC)
On the plus side, it sounds like you've found an engaged, qualified and responsive doctor. Yay.

But since neither is within the range for an official diagnosis of either, I don't have them.

This puzzles me - if they are IN evidence, can't you at least be consider to have a mild version of the diagnosis? Grr. I hope the next sleep study provides data that helps this doc craft a lasting, helpful solution. No REM is no good. *hugs*

Hang in there, babe. I know it's hard and I'm sorry I'm a bit further out from being there to actively help in person. I love you. I'll keep sending good wishes for healthy, restful sleep and better days.
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[User Picture]From: wonderreader
2009-02-25 03:55 pm (UTC)

sleep study

Glad you found a doctor who sounds like he is interested and interesting. what is with the no REM thing??? how odd....I do hope that he finds something - just so you can have at least some sort of partial silver bullet. I have always known that you are "complicated" it goes with "interesting". good luck with the roof - hang in there babe - you will find an answer.
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[User Picture]From: miss_chance
2009-02-25 06:32 pm (UTC)
Hey, this is really cool to read-- the part about you having two doctors who are communicating and working together with you through complicated stuff. that's nothing short of amazing (though it shouldn't be!).

Sorry 'bout the curled around the belly, lousy... that's how I was all last night, too. :(

New skylights sound nice, though.
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